We wrote about Roman last year, when we bought meds for him after NFT-sale
“Roma is three and a half years old and from Vologda. Maxim is five years old, from a small town in Bashkortostan. But for doctors at the Dima Rogachev Children's Hematology Center, their stories are very similar. Both children have a very severe genetic disease, which affects only boys and dramatically impairs the function of the hematopoietic and immune systems. Wiskott-Aldrich syndrome entails dramatic deterioration of blood clotting, reduce resistance to infections, and produce a high risk of malignant tumors. Normal full life with this disease is only possible after a bone marrow transplant from a healthy donor: in this case, transplantation replaces the hematopoietic and immune systems with a donor's cells. But transplantation is a difficult and aggressive treatment. And during the period when the child is recovering from the introduction of donor cells, severe infectious and immune problems are possible, associated already with the consequences of the transplant itself. Sometimes these problems are of a very persistent nature, lasting many months or even years.”
Now Roma needs another treatment with Foscavir and Cidofovir. Thanks to you, we bought these medications.
UDT (07/03/2022) Unfortunately, Roma lost the battle, may he rest in peace.